Stroke and Prolonged Grief

May 2019: Large et al (In Press) A changed reality: Experience of an acceptance and commitment therapy group after stroke. Neurophsychological Rehabilitation, DOI: 10.1080/09602011.2019.1589531

The honesty and frankness of Stephen Jenkinson, a “grief monger”, is refreshing. He’s currently touring Australia, but please assume this is not a promotion of his tour and that I’m not a beneficiary. I refer to him because his ideas interest me. In an interview with the ABC in 2016, he stated: “Every solution to dying that we come up with preserves the fear of it while claiming to absolve us of it.” Hmmm… is it time to talk about this?

Of course, I’m not suggesting that stroke is synonymous with dying, but up to one third die within the first year. However, stroke is synonymous with the experience of prolonged grief. In my search for studies investigating post-stroke grief in the past 2 years, I found only one! Large et al (In Press) investigated the efficacy of Acceptance and Commitment Therapy (ACT) after stroke, and found the main difficulty survivors face is “accepting the changed reality”. Do the clinical practices associated with stroke recovery include time and interventions targeting prolonged grief and the “accepting the changed reality”; or, is most of what we do as professionals, an avoidance of this?

To find Large et al’s abstract, please go to the Journal Club 2019 page. This article is not publicly available, so you may need to purchase it or ask your facility’s librarian. Please find my “humble opinion” as a posted comment.

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